Current Results for Request to Promote Your Research Opportunity
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2. Title of Research Project
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Patient 2 Innovator
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Strategies for Managing Neuropathic Pain Post-Spinal Cord Injury (SCI)
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Co-designing Family Centered Care Across the Care Continuum
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Developing perceived exertion as an exercise prescription tool for high-intensity interval training.
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View All Responses for question #2
3. Short Summary:
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Bringing Patients with lived experience at equal table in early-stage health innovation ideation.
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The purpose of this study is to evaluate clinicians' use of different treatment options for neuropathic pain (NP) post-spinal cord injury (SCI) in daily clinical practice.
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This qualitative descriptive study aims to understand individuals with Spinal Cord Injury (SCI) and family caregivers' perceptions of family centered care (FCC) across acute, rehabilitation and community care environments.
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This research will how to prescribe exercise when one cannot use their heart rate due to altered autonomic function. In addition, we will examine the variables that are associated with how people feel during exercise, specifically high intensity.
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View All Responses for question #3
4. Research Organization:
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University of Toronto
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Parkwood Institute St. Joseph's Health Care London
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The University of Toronto. This research is funded by a grant from the Craig H Neilsen Foundation.
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Principal Investigator: Dr. Maureen MacDonald
Department of Kinesiology, McMaster University (project approved by HIREB).
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View All Responses for question #4
5. Who's Eligible?
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18yrs +; Spinal cord injury experience ( lived or caring for); Speak and read English proficiently; ability to attend a video conference for 2 hrs + answer questionnairs
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Clinicians (including, but not limited to, doctors, physiotherapists, occupational therapists) who have worked in an SCI program for a minimum of 3 months and are directly or indirectly involved with NP management.
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English speaking individuals with SCI (n=20-30) must be a minimum of 6 months post injury and have completed inpatient care and family caregivers (n=20-30) providing care for a minimum of 6 months. Participants must reside in Canada.
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Age 18-100 years
A mobility impairment individual due to a chronic traumatic spinal cord injury (>12
months post-injury)
Use a hand-rim propelled wheelchair for over 50% of their daily waking time, walker,
cane, or walking
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View All Responses for question #5
6. What's Involved?
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attending a Hackathon on a topic within the SCI domain. A 2 hours virtual attendance. Answer a pre and post survey on patient engagement.
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You will be asked to complete an approximately 30-minute anonymous online survey evaluating your use of different treatment options for SCI NP.
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Data will be collected through interviews that can be completed in person, by telephone, or online (e.g., zoom). Interviews will take approximately 1 hour to complete.
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maximal exercise testing, questionnaires, skin temperature measurement, heart rate monitoring with chest strap, arm cycling exercise, blood pressure measurement, maximal arm strength testing (all non-invasive testing)
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7. Payment/Compensation For Participants:
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User Provided No Response
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none
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User Provided No Response
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Participants will receive 25-dollar gift card as a token of appreciation.
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$50 upon completion and travel/transportation reimbursement.
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View All Responses for question #7
8. Link URL to survey or documentation:
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User Provided No Response
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website will be avaiable within next week at the latest. Due to previous IP mishaps, I would be delighted to share our proposal and consent form upon connecting.
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https://redcap.lawsonresearch.ca/surveys/?s=L8NDWLWRJJPPNXJ7
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n/a but we have a study flyer that can be circulated.
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Consent form, recruitment posters, accessibility video: https://mcmasteru365-my.sharepoint.com/:f:/g/personal/valens_mcmaster_ca/EgMmO8iEISRNn-XdGz_McH0BwbIPuoG7UNaTdjz4QGD2NQ?e=SpSYVt
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View All Responses for question #8
9. Contact Information For Participants:
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User Provided No Response
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Dominique Pilon : dominique.pilon@mail.utoronto.ca; Ateeya Manzoor: ateeya.manzoor@mail.utoronto.ca
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Priya Thandrasisla, Research Assistant at Parkwood Institute
Priya.thandrasisla@sjhc.london.on.ca
519-646-6100 x 42739
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caregiving.study@utoronto.ca
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Sydney Valentino
valens@mcmaster.ca
6472993559
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