Spinal Cord Injury Ontario

Current Results for Request to Promote Your Research Opportunity

1.

Total Number of Responses

17

2. Title of Research Project

Latest User Responses:

The utility of clinical measures for determining driving capability following spinal cord injury
 

 

 

The development of a tailored online mindfulness program for individuals with spinal cord injury (phase 1: qualitative interviews)
 

 

 

Through the lens of people with spinal cord injury: Using photovoice to prevent falls
 

 

 

Spinal cord injury mental health functional outcomes improved by Mindfulness
 

 

 

The brain during movement execution and movement observation in children with spinal cord injury
 

 

 


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3. Short Summary:

Latest User Responses:

The purpose of this research study is to better understand the relationship between clinical measures of function and mobility and driving performance following spinal cord injury.
 

 

 

The purpose of this research study is to identify recommendations for an online mindfulness program that suits the specific needs of people with SCI.
 

 

 

Aim to develop a novel intervention that improves falls self-efficacy and balance confidence, and reduces the occurrence of falls and fall-related injuries, for all individuals living with SCI, resulting in increased participation and quality of life.
 

 

 

Mindfulness meditation is a form of stress-reduction therapy which improves spinal cord injury pain. We are exploring how it could also improve the outcomes of mental health like perceived stress, pain catastrophizing, and quality of life/sleep.
 

 

 

We want to understand how the brain of children with SCI activates during the observation and attempted execution of hand movements. We want to understand how such brain activations compare between typically developing children and children with SCI.
 

 

 


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4. Research Organization:

Latest User Responses:

KITE-Toronto Rehab, University Health Network
 

 

 

University Health Network
 

 

 

KITE-Toronto Rehabilitation Institute, University Health Network
 

 

 

Queen's University
 

 

 

Holland Bloorview Kid's Rehabilitation Hospital
 

 

 


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5. Who's Eligible?

Latest User Responses:

We are looking for individuals with: A spinal cord injury/disease At least 2 years of driving experience The ability to speak English The ability to stand and transfer independently into a vehicle
 

 

 

18 years or older At least 1 year since time of spinal cord injury No longer participating in a comprehensive rehabilitation program Fluent in English
 

 

 

People living with spinal cord injury (SCI) for at least one year who have experienced at least one fall since sustaining their SCI.
 

 

 

Participants must be: - 18 years or older - Have any kind of spinal cord injury - Can read English - Own a smartphone to download a mindfulness meditation app of choice - Have hand use or assistance to fill out surveys
 

 

 

Children and youth (9-19 years old) with SCI who have weakness or paralysis of the upper limb.
 

 

 


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6. What's Involved?

Latest User Responses:

Individuals will complete a series of clinical assessments for function and mobility (i.e. Berg Balance Scale, Manual Muscle Testing, etc.). Individuals will complete a series of driving sessions (x2) in our driving simulator (i.e. DriverLab).
 

 

 

One telephone interview lasting approximately 45-60 minutes
 

 

 

This study involves four questionnaires over four time points, tracking of falls over two separate 12-week periods, two photo assignments, two individual interviews, four group meetings, and a final interview. Study activities will span over three phases.
 

 

 

Half of participants will use a mindfulness meditation app for 10 minutes a day for 8 weeks. In weeks 0, 8, and 12 all participants do mindfulness, anxiety/depression, stress, quality of life/sleep, pain, satisfaction, and benefits/side effects surveys.
 

 

 

4 visits to Holland Bloorview Kid's Rehabilitation hospital each up to 1.5 hours. The participant will be asked to perform and observe hand movements while wearing EEG electrodes on the surface of their head.
 

 

 


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7. Payment/Compensation For Participants:

Latest User Responses:

Participants will receive $100/session (3 total sessions) to compensate for time and travel expenses.
 

 

 

Visa/Mastercard Giftcard ($100)
 

 

 

Honorarium of $37.50/hour
 

 

 

A $10 gift card will be given to all participants
 

 

 

10$ per session and 5.5$ parking pass.
 

 

 


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8. Link URL to survey or documentation:

Latest User Responses:

User Provided No Response
 

 

 

We have REB-approved recruitment documents that we can share with you to distribute.
 

 

 

We have REB-approved Newsletter Recruitment and Social Media Post documents that we can share with you to distribute.
 

 

 

Letter of Information and Consent Form: https://queensuca-my.sharepoint.com/:w:/g/personal/16mw34_queensu_ca/EcxQrBYv0u1OiNrz9eR3t0wBnognq7knWbuUvQdEe6SZGw?e=XMEhto
 

 

 

Information letter available at: https://redcap.hollandbloorview.ca/surveys/?s=WMHD44XYY7
 

 

 


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9. Contact Information For Participants:

Latest User Responses:

Study Coordinator: David Houston (416-597-3422 ext. 6539)
 

 

 

dorothy.luong@uhn.ca
 

 

 

katherine.chan@uhn.ca
 

 

 

To enrol contact: Meagan Wiederman m.wiederman@queensu.ca 519-404-2680 Contact the supervisor: Karen Smith, MD smithk2@providencecare.ca
 

 

 

phone: 416-425-6220 x 3260 email: nhashemi@hollandbloorview.ca
 

 

 


View All Responses for question #9